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Patient Story 3: Zina, New Orleans

Because my husband’s doctors didn’t have full access to his medication records, he suffered from cardiac arrest due to a contradiction in his meds.  We almost lost him.

My husband has health issues, all of which require him to see several different specialists.  Although I tried to keep each doctor informed of his medications and adjustments that other doctors made to them, they were never able to get a full grasp of exactly what he was taking and how certain medications could affect his other health issues or interact with each other.  Shortly after an adjustment in a particular medication, he went into cardiac arrest where he was without a heart beat for several minutes.  He remained in a coma for two days.  Although he came out of the coma, he is now dealing with the after-effects of oxygen deprivation and brain damage including severe loss of motor skills and vision.  Had there been an efficient and effective way of sharing his medical information with all of his specialists, this may have been avoided.


Patient Story 2: Renieri, Metairie

If all providers were able to share and view my mother’s complete medical history electronically...perhaps she wouldn’t still be suffering today from her undiagnosed condition.

"For the last year and a half, I’ve been helping my mother manage some of her health issues. We’ve visited many different doctors where she has had procedures ranging from things as simple as blood work to more complex procedures like an MRI and a CAT scan. After a year and half, she still hasn’t received a diagnosis. Even though this endless cycle has been frustrating and my mother still suffers from her symptoms, we both realized that sharing her medical records with different providers has been just as frustrating. Recently, a new provider requested her records from a local hospital three times and they never received a single page. After three month of waiting, I visited the hospital to pick them up myself. In response to this situation, I made copies of all of her records, and when we go to visit a new provider, we now hand over a binder with a copy of all her records. It sounds archaic and ridiculous, but that’s what it takes to navigate today’s healthcare system. If all providers were able to share and view my mother’s complete medical history electronically, I’m confident her care would be improved, and perhaps she wouldn’t still be suffering today from her undiagnosed condition."

- Renieri, Metairie

 


Patient Story 1: Lauren, New Orleans

Not having a system in place where my medical records can be shared quickly between doctors and hospitals, is a dangerous, possibly life-threatening situation. 

“After being diagnosed with a blood clot in my leg, I have been on a strong blood thinner for the last 6 months.  Because of my condition, I remain on a very high dosage. As a result, if I get a minor cut or wind up in surgery, I will bleed excessively.  If I get into an accident where I am unable to speak for myself, there is no way for an Emergency Room doctor or anyone else to know that I am on this medication, which puts my life at risk.  Not having a system in place where my medical records can be shared quickly between doctors and hospitals, is a dangerous, possibly life-threatening situation.  For my sake and others, I hope electronic sharing of electronic medical records becomes the norm as quickly as possible.”

 - Lauren, New Orleans